I wound up being discharged from the hospital in Lawrence after a couple of days, and it was incredible to see Cecilia in Kansas City. She was still in pretty rough shape when Nora and I got to Children's, but she was stable, and getting better. Each day it seemed they took her off of another medication. She had been on anti-seizure meds, as she'd had a number of seizures in the two days directly following her birth. After a few days, she was only on antibiotics to get rid of her infection.
The doctors performed an MRI after she's been in Kansas City for a few days, and it showed some diffused damage to her brain from the lack of oxygen before she was resuscitated directly following her birth. That was some pretty hard news to swallow. The doctors kept telling us how resilient babies are, and it turned out they were right - a week later they performed another MRI, and all of the damage had disappeared. Aaron and I would like to thank everyone reading this who said a prayer for her, because she is the greatest miracle I can imagine.
The whole hospital stay is a blur. We were there two weeks. For the first week or so, Aaron and I stayed in the Ronald McDonald House across the street. For the second week, I was able to sleep in a room with Cecilia, but Aaron still had to stay in the Ronald McDonald house. The Ronald McDonald House was wonderful; I can't say enough good things about it, and how nice everyone was to Aaron and I while we were there. During this whole time, Nora was driving back and forth between Lawrence and Kansas City every day. I really don't know what we would have done if Nora hadn't been there. She provided us with sanity during a completely insane time in our lives. We had tons of support from friends - Brian and Belinda visited us a number of times, as did lots of other friends from KU and Burns and MacDonnell. I've never recieved so many phone calls and notes of support from friends and family, near and far.
It seems the hospital stay was in another life, and really it was only a couple of weeks ago that we got to come home. Coming home with Ceci was the best thing ever.
Since coming home, we've had the chance to adjust to "normal" life as new parents. We're starting to fall into a schedule of sorts... and we're finally starting to feel like parents. It's kind of weird how that feeling doesn't happen instantaneously. We loved Ceci from the get-go, but it's taken time for me to feel like a real mom. She seems absolutely better. She is such a joy in our lives.
So, anyway, this is all why her middle name is Grace. Before the birth, we'd talked about using "Rose" or "Irene" as a middle name. However, when we were in the nursery at Lawrence Memorial Hospital, it was very clear that she was with us by the grace of God alone.
The doctors performed an MRI after she's been in Kansas City for a few days, and it showed some diffused damage to her brain from the lack of oxygen before she was resuscitated directly following her birth. That was some pretty hard news to swallow. The doctors kept telling us how resilient babies are, and it turned out they were right - a week later they performed another MRI, and all of the damage had disappeared. Aaron and I would like to thank everyone reading this who said a prayer for her, because she is the greatest miracle I can imagine.
The whole hospital stay is a blur. We were there two weeks. For the first week or so, Aaron and I stayed in the Ronald McDonald House across the street. For the second week, I was able to sleep in a room with Cecilia, but Aaron still had to stay in the Ronald McDonald house. The Ronald McDonald House was wonderful; I can't say enough good things about it, and how nice everyone was to Aaron and I while we were there. During this whole time, Nora was driving back and forth between Lawrence and Kansas City every day. I really don't know what we would have done if Nora hadn't been there. She provided us with sanity during a completely insane time in our lives. We had tons of support from friends - Brian and Belinda visited us a number of times, as did lots of other friends from KU and Burns and MacDonnell. I've never recieved so many phone calls and notes of support from friends and family, near and far.
It seems the hospital stay was in another life, and really it was only a couple of weeks ago that we got to come home. Coming home with Ceci was the best thing ever.
Since coming home, we've had the chance to adjust to "normal" life as new parents. We're starting to fall into a schedule of sorts... and we're finally starting to feel like parents. It's kind of weird how that feeling doesn't happen instantaneously. We loved Ceci from the get-go, but it's taken time for me to feel like a real mom. She seems absolutely better. She is such a joy in our lives.
So, anyway, this is all why her middle name is Grace. Before the birth, we'd talked about using "Rose" or "Irene" as a middle name. However, when we were in the nursery at Lawrence Memorial Hospital, it was very clear that she was with us by the grace of God alone.